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| March 8, 2005 Avalon in the hospital |
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| Sent: Tue, 8 Mar 2005 11:59:34 -0600 Subject: Avalon in hospital Justa quick Hi to everyone. We are back in Children's, room 5512 to be exact. Avalon didn't need blood - the problem may be a bit bigger. For a while yesterday, they were actually worried about a stroke. Thankfully, the CT scan was negative. Wahoo!! Currently, we're having issues with her port causing a lot of pain, and extreme soreness in her left extremities. We're waiting for blood cultures, doctors, ideas... Basically, life on a Heme-Onc unit is a lot of hurry up and wait. Apparantly the unit turns reasonably normal children into little bald bats. A)Avalon was making me zip her through the halls in a car at 11:30 pm last night, and B) she's lost nearly all of the rest of her hair since arriving in her room at 5:30pm yesterday. She's finally noticing that there isn't very much left there... Sissies are here now visiting. They brought her a Build-an-Elmo from Build a Bear. He has on scrubs -and they even got him a doctor bag - so he is currently "fixing" a smaller Elmo. She is THRILLED. Elmo and clothes, it doesn't get much better. Well, if Elmo could carry a purse and wear a fancy hat, she would think she'd found Eden... By the way, the manager of Build A Bear overheard the girls talking about who Elmo was for. He gave Elmo to Nick for free! They only paid for the outfit, voicebox and doctor bag. That is one giant vote for B.A.B. in my book. I wanted you all to know that. Good deeds and good companies deserve high praise. We have no clue how long we're here. You're welcome to call. I believe the number is 614-355-5512. I know for sure the room is 5512, if you call the main number. Also, this email won't be going to several people on the list, because their addresses aren't in my webmail book yet. If you see that someone is missing, or if you know how to harvest email addresses from previous emails...please help me update everyone. I appreciate the help. Keep sending the positive thoughts! Your wishes and hopes made that CT scan negative, I'm just sure of it!! The doctors cheered and grinned ear to ear, and so did we. Thank you. We love you- each and every one of you. Alicia, Nick, Aurora, Ambrosia and AVALON |
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